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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.

This topic has 4 replies, 3 voices, and was last updated 7 months ago by Kevin Schaefer.

  • Author
    • #21131
      Kevin Schaefer

      Hey everyone! Hope you’re all having a great week so far.

      Check out my latest column here. Halloween is almost here, and I get super into it. I wrote about how Halloween fosters a spirit of imagination, and how imagination is such an important tool for those of us with SMA. We thrive on our imaginations to figure out solutions to everyday problems, and to live our lives. At least, that’s my perspective.

      Are you a fan of Halloween? What do you think about imagination intersecting with life with SMA?

    • #21152
      Halsey Blocher

      I’m not a huge Halloween person, but I do enjoy it. Mostly I enjoy the chocolate. But I do also like seeing how creative people get sometimes.

      • #21157
        Kevin Schaefer

        Thanks Halsey! And yes, I’m a big fan of chocolate too haha.

    • #21180
      Alyssa Silva

      My favorite part about Halloween is going to bed and waking up to knowing that it is officially acceptable to listen to Christmas music. 🙂 However, I am a big fan of pumpkin Reese’s and the overall season that comes with the holiday!

      Love the column, Kevin. Great connection made with the spirit of Halloween and getting creative living with SMA.

      • #21205
        Kevin Schaefer

        Yeah I have plenty of family members who are already in Christmas mode too. For me it’s Star Wars season lol.

        And thanks!

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