SMA News Forums Forums Treatments and Research Evrysdi (risdiplam) Columnist Writes About Healthcare Roadblocks

  • kelly-miller

    January 4, 2021 at 5:36 pm

    Well, I have to say Brianna that probably takes the prize! Was this your personal doctor or was it Genentech? I can’t imagine, or maybe I can, what I would say if my doctor told me something similar to that. I’m afraid I wouldn’t be very nice; however he would be within the parameters of his job, easily saying it’s how he’ll determine if he thinks you’re doing it for the right reasons, are a good candidate, understand the seriousness of taking a brand new drug with a huge price tag, blah, blah, blah. Hopefully it isn’t the 1st time he’s asked equally strange requirements of you b/c it would mean this is the type of Dr-patient relationship y’all have. Just remember, you always have the right to change doctors.


    If it was Genentech … wow!

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