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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 2 voices, and was last updated 10 months, 2 weeks ago by Adnan Hafizovic.

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    • #20757
      Ryan Berhar
      Member

      Hey everyone, here’s Michael’s newest column. He talks about Ella’s recent ankle injury that she sustained on her adaptive bike. They had to make another trip to the ER to get it x rayed. Fortunately, it’s sprained, not broken. I’ve had ankle injuries myself, and they’re some of the worst pain ever. Have you guys had any similar incidents?

      Ella Takes Another Trip to the Emergency Room

    • #20797
      Adnan Hafizovic
      Participant

      I had similar accidents, but fortunately, and thanking God, I did not break anything. Once I dropped out of the wheelchair and fell on my leg, luckily I was wearing winter boots so I just stretched my ankles.

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