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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 0 replies, 1 voice, and was last updated 2 months, 2 weeks ago by Ryan Berhar.

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      • #20663
        Ryan Berhar

        Hey everyone, here’s Michael’s newest column. He has talked about his daughter Ella’s singing hobby before, and she has now started songwriting, too. While it’s important for any kid, I think it’s even more important for kids with SMA to find an extra-curricular activity to excel at. For me, it was, and still is,  chess. I can’t compete at anything physical, but beating people at chess has always given  me a sense of pride. I want to encourage any parents here to help your child find something like that. To anyone else, what activity or hobby has been valuable in your life?

        Ella Discovers a New Talent for Songwriting

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