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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 0 replies, has 1 voice, and was last updated by  Ryan Berhar 1 month ago.

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    • #20663
       Ryan Berhar 

      Hey everyone, here’s Michael’s newest column. He has talked about his daughter Ella’s singing hobby before, and she has now started songwriting, too. While it’s important for any kid, I think it’s even more important for kids with SMA to find an extra-curricular activity to excel at. For me, it was, and still is,  chess. I can’t compete at anything physical, but beating people at chess has always given  me a sense of pride. I want to encourage any parents here to help your child find something like that. To anyone else, what activity or hobby has been valuable in your life?

      Ella Discovers a New Talent for Songwriting

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