SMA News Forums Forums Our Community Adults ​With​ ​SMA Columnist Writes About Looking For Good While Feeling Rundown

  • rachel-markley

    July 17, 2019 at 7:47 am

    I’m really struggling lately with everything in this blog. I’m over not being able to help and not having enough energy for fun. The fatigue has improved since Spinraza but it’s still hard working full-time and having 11 hour days.

    • ryan-berhar

      July 17, 2019 at 9:21 pm

      That’s definitely tough. What do you do, out of curiosity?

  • halsey-blocher

    July 17, 2019 at 9:30 pm

    I can relate to wanting to help my family, especially in stressful situations. I try my best, but sometimes I want nothing more than to be able to give people a great big hug when they’re having a bad day. It sounds like also had some really awesome things happening too though! I’m usually an optimist so I tend to try to focus on the positives as well.

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