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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 3 replies, has 3 voices, and was last updated by  Halsey Blocher 1 month ago.

    • Author
      Posts
    • #19857
       Ryan Berhar 
      Keymaster

      Hey everyone, here’s Kala’s newest column. It has been a stressful year for her, but she’s still made a lot of progress. What stuck out to me was where she talks about her desire to help her family, but not being physically able to. This happens to me often. Not only am I unable to help, but sometimes I’m actually in the way, which is way more frustrating. Can you relate? What takeaways do you have from this column?

      Looking for the Good When I’m Feeling Run-down

    • #19864
       Rachel Markley 
      Participant

      I’m really struggling lately with everything in this blog. I’m over not being able to help and not having enough energy for fun. The fatigue has improved since Spinraza but it’s still hard working full-time and having 11 hour days.

      • #19880
         Ryan Berhar 
        Keymaster

        That’s definitely tough. What do you do, out of curiosity?

    • #19883
       Halsey Blocher 
      Participant

      I can relate to wanting to help my family, especially in stressful situations. I try my best, but sometimes I want nothing more than to be able to give people a great big hug when they’re having a bad day. It sounds like also had some really awesome things happening too though! I’m usually an optimist so I tend to try to focus on the positives as well.

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