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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 1 voice, and was last updated 2 weeks, 6 days ago by Patrick Lenihan.

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    • #24232
      Brianna Albers
      Keymaster

      Hi everyone!

      So, COVID cases are on the rise across the country. However, my family recently decided to bring caregivers back into the house on a week-by-week basis. We’re taking plenty of precautions, including masks, gloves, and social distancing. Also, my dad is taking care of my personal hygiene, so the PCAs don’t have to get too close to me.

      In my latest column, I talk about our decision to reintroduce PCAs, and how much we’ve missed having them around as part of the family.

      Have you considered reintroducing hired caregivers?

    • #24289
      Patrick Lenihan
      Participant

      I have maintained my caregivers throughout the pandemic but since late February we have had a strict glove and mask policy in our home. My caregivers happen to have medically vulnerable family members living in their own homes so they have been taking the pandemic seriously and refraining from risky behaviors when not working.

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