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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic contains 3 replies, has 2 voices, and was last updated by  Halsey Blocher 5 days, 19 hours ago.

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    • #21191
       Alyssa Silva 
      Keymaster

      Happy Monday, everyone! Here’s to a new week.

      In case you missed it, here’s my latest column where I discuss the bittersweet feeling of autumn. I’m a sucker for everything this season brings— including the brisk weather— so it would be remiss of me to not acknowledge that.

      However, autumn means winter is around the corner. Which means cold and flu season is ready to rear its ugly head. Which means it’s almost time for me to essentially hibernate in my home. Can you see how this time of year is bittersweet for me???

      I’ve been really trying to soak in these last few weeks of “freedom,” and it got me thinking: am I the only one who feels this way? Does autumn bring these same bittersweet feelings for you, too?

      Would love to hear your thoughts!

    • #21213
       Halsey Blocher 
      Participant

      This time of year definitely causes some mixed emotions for me. On one hand, I love the beautiful fall colors, and I’m becoming eager for the approaching holidays. On the other hand, my body reacts pretty poorly to the cooler temperatures, and I’m dreading the possibility of having to miss out on things because sicknesses that get passed around. I try to stay focused on the positives though.

      • #21225
         Alyssa Silva 
        Keymaster

        I totally feel you on this. There have even been some Christmases I’ve had to skip out on because family members were sick. Hope you stay healthy this cold and flu season, Halsey!

        • #21230
           Halsey Blocher 
          Participant

          That would be terrible! We almost always host Christmas, and no one is allowed to come if they are sick. They get their gifts later. Unfortunately there are sometimes people who come anyway, but we let them stay as long as it’s not too bad and they keep their distance. I hope you stay healthy as well! Flu season is always a little scary, so fingers crossed!

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