• Posted by scott-inouye on October 29, 2019 at 10:28 am

    My granddaughter is 3 yrs old type 2 and was diagnosed shortly after Spinraza was approved. She has had several treatments now and has seen significant gains. With new drugs being approved and studied, is there anyone looking at these in combination with Spinraza? I am in the r/d field so I have been doing my own investigating but so far have come up short of information regarding this.

    kevin-schaefer replied 4 years, 7 months ago 2 Members · 1 Reply
  • 1 Reply
  • kevin-schaefer

    Member
    October 29, 2019 at 12:45 pm

    Hey Scott, thanks for asking this. See Michael’s comment on your previous post, but I’d also recommend listening to the SMA News Today Podcast. We’ve addressed this topic there before, and I’m sure we’ll have more news to talk about in the coming months.

    Like Michael said, it is all speculation at this point, but I do think pharmaceutical companies are looking into some sort of a combined therapy. For me personally, I’m content with Spinraza at the moment. But it will be interesting to see what kind of developments happen with Risdiplam and other therapies.

    Keep us updated on your granddaughter!

    Best,

    Kevin

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