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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 2 voices, and was last updated 9 months, 1 week ago by Halsey Blocher.

  • Author
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    • #21247
      Alyssa Silva
      Keymaster

      I feel like I’m chronically fatigued, but I swear daylight savings time brings my exhaustion to a whole new level. And, as a result, my body tends to suffer physically— ie. weaker voice, slower to chew and swallow, unable to use my hand/arm to type or use my wheelchair as well as I’d like to.

      I know we technically gained an hour, but with shorter days and my body’s internal clock not yet readjusted, I am struggling.

      Anyone else affected by this?

    • #21271
      Halsey Blocher
      Participant

      This makes total sense! Something about the sun going down so early is just exhausting. I wouldn’t be at all surprised if the sadness caused by the lesser amount of light has a direct correlation to to how we physically feel.

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