SMA News Forums Forums Treatments and Research Spinraza (nusinersen) Dealing With Pre-Spinraza Fatigue

  • alyssa-silva

    May 20, 2020 at 9:51 am

    Thanks for sharing your experience, Kevin. I feel fatigued as well when I’m approaching my next dose— typically around the 12-week mark. I was a month late for my most recent dose due to the pandemic, and it was honestly scary how weak my body was. I know Spinraza helps, but sometimes I forget how much of a difference it actually makes because I’m so used to it. Needless to say, this past month was a huge eye-opener for me.

    Hope all goes well for you today!

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