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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


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      DeAnn R
      Keymaster

      Are you aware July is Disability Pride Month?  The younger me would roll my eyes at this.  Now though I think taking pride and owning your disability goes a long way in others accepting differences as well.  For me one way to do this is by living life.  A prime example of this is Katie Napiwocki.  In her latest column she shares how she met her significant other and some of challenges they’ve been through over the last 14 years when it comes to disability. My favorite quote from the article, “Normalcy doesn’t actually exist.” So true. How do you take pride in disability?

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