SMA News Forums Forums Treatments and Research Evrysdi (risdiplam) Do you have questions about risdiplam?

  • tracy-odell

    March 12, 2020 at 11:25 am

    What are the benefits expected for older adults with SMA 2 (50+ years)?

    Do you have to take it every day for the rest of your life?

    What is the expected cost?

  • alyssa-silva

    March 13, 2020 at 10:43 am

    All excellent questions, Tracy! I’m curious to know these answers, too.

    With the drug currently under review, the FDA limits the amount of information the pharmaceutical company is allowed to release. Right now, the only concrete information we know is that Roche/Genentech has received priority review status, and this priority review status gives a good indication of the success of the clinical trials. But until the FDA actually grants Roche/Genentech approval for risdiplam, it’s probably more speculation than fact.

    When more information becomes available, we will be sure to inform our forum members as soon as possible!

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