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    Planes, Trains, & Accessible Travel With SMA

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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 0 replies, has 1 voice, and was last updated by  Brianna Albers 3 months, 3 weeks ago.

    • Author
    • #19531
       Brianna Albers 

      Hi everyone! I’m writing this in the back of our van somewhere in the flatlands of Wyoming. My parents and I are on our way to the Cure SMA conference in Anaheim, CA, which I mention briefly in this week’s column. The past month or so has been ridiculously busy, and now that we’re on the road, things feel that much more frazzled. We’re essentially hotel-hopping, though in a few days we’ll be staying at the Disneyland Hotel — which I am very, very excited about.

      That being said, there’s serenity to be found in the eye of the storm. It’s different at home when my parents and I are running around like chickens with their heads chopped up. Here, surrounded by stubby grass and the occasional whitecap, we have no choice but to rely on each other. Over the years I’ve found that the sillier things get, the calmer we become. Like my mom was saying the other day, “Sometimes you just have to laugh maniacally.”

      Have you experienced this in your own life?

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