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  • For this family, every day is a gift

    Posted by alyssa-silva on August 26, 2020 at 11:00 am

    I always love hearing stories of how newly diagnosed families are able to get their child on a treatment right away. Katie McIntosh’s story about her daughter is no different.

    Reena, Katie’s daughter, received her first dose of Spinraza the day after her diagnosis. Just recently, at 17 months of age, the family received government funding in Australia so Reena could also get Zolgensma. How incredible is that?

    Today’s 31 Days of SMA is a poignant reminder that every day is a gift. With SMA, you never know what could happen from one day to the next. But, there is still joy to be found and little (or big!) moments to celebrate.

    As a parent, do you resonate with what Katie has shared? What treatments have your child received, if any?

    alyssa-silva replied 3 years, 10 months ago 1 Member · 0 Replies
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