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The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.

This topic has 2 replies, 3 voices, and was last updated 2 months ago by DeAnn R.

  • Author
    • #24274
      Teri Taylor

      Hi everyone! I am nana to Charleston “Cash” Goeppert, a Type 1 that’s 10 years old!!! I didn’t know about this forum until recently and I’m happy to be here to share and to learn.

    • #24277
      Alyssa Silva

      Hey Teri! So great to have you here.

    • #24280
      DeAnn R

      Welcome Teri, glad to have you with us. Say hi to Cash for us too!

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