• Happy 8th birthday, Ella!

    Posted by sma-news-today-moderator on June 20, 2018 at 2:37 pm

    As his daughter Ella reaches another milestone, her 8th birthday, columnist Michael Casten recalls her birth the day she was diagnosed with SMA. He writes: “Ella is now 8 years old and thriving. Yes, she’s confined to a wheelchair. Yes, she needs help with many activities of daily living. Yes, the disease has compromised her health significantly. But no, SMA does not define her. Ella is defined by who she is as a person. Sensitive, caring, good-humored, bright, loving, and a fighter.”

    Read more here: “Happy 8th Birthday, Ella

    Help us wish Ella a happy birthday and leave her a message below!

    kevin-schaefer replied 5 years, 11 months ago 2 Members · 1 Reply
  • 1 Reply
  • kevin-schaefer

    Member
    June 20, 2018 at 5:30 pm

    Thanks for sharing Michael. I’m always encouraged by stories of SMA parents like this. I just got back from the annual Cure SMA conference, and during the “It’s a Wonderful Life” panel there were several parents who came up to me and said that our (the SMA adults who spoke at the panel) gave them hope for the future.

    Hope your family and Ella are all doing well!

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