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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 1 reply, 2 voices, and was last updated 1 year, 7 months ago by Kevin Schaefer.

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      • #11981
        Michael Nace
        Keymaster

      • #12001
        Kevin Schaefer
        Keymaster

        Spinraza is the first and only kind of treatment I’ve used, aside from things like my BiPAP and cough assist machines to combat respiratory issues. Prior to Spinraza, I never participated in any kind of clinical trial.

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