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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

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      • #20367
        Kevin Schaefer

        Hey everyone, hope you all had a great weekend!

        For today’s Motivation Monday post, I wanted to share a YouTube channel that I recently came across. This vlogger is a woman with SMA, and she shares her college experiences in her latest video. I haven’t met Jennifer, but I met her brother at an SMA conference a few years ago.

        Jennifer does a great job explaining the specifics of navigating college when you have a disability. She discusses things like: hiring and managing caregivers, living on campus, navigating campus in a wheelchair, and more. This is a great motivational and educational video to watch if you’re looking into college. My college experience wasn’t always easy either, but like Jennifer, I loved it. I’ve written several columns about this subject.

        Do you have any takeaways from this video? Do you have any questions about going to college?

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