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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

This topic has 0 replies, 1 voice, and was last updated 11 months, 2 weeks ago by Kevin Schaefer.

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    • #20367
      Kevin Schaefer

      Hey everyone, hope you all had a great weekend!

      For today’s Motivation Monday post, I wanted to share a YouTube channel that I recently came across. This vlogger is a woman with SMA, and she shares her college experiences in her latest video. I haven’t met Jennifer, but I met her brother at an SMA conference a few years ago.

      Jennifer does a great job explaining the specifics of navigating college when you have a disability. She discusses things like: hiring and managing caregivers, living on campus, navigating campus in a wheelchair, and more. This is a great motivational and educational video to watch if you’re looking into college. My college experience wasn’t always easy either, but like Jennifer, I loved it. I’ve written several columns about this subject.

      Do you have any takeaways from this video? Do you have any questions about going to college?

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