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The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.

This topic has 0 replies, 1 voice, and was last updated 1 year, 11 months ago by Kevin Schaefer.

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    • #14547
      Kevin Schaefer

      These days, it’s a lot harder for me to move my hands on my iPad screen and use the keypad. There’s voice-activated technology and such, but in general it’s just easier for me to type on my phone.

      [caption id="attachment_14549" align="alignright" width="414"] Me using the new DC Comics streaming service on my iPad[/caption]


      That said, it’s really nice when I can find an app that serves multiple purposes and can entertain me for a while. I just purchased the DC Universe app (super-nerdy, I know), and it’s great. I can use it to stream shows and movies, read digital comics and view news and encyclopedic content related to DC entertainment. Once my Dad helped me get set up with it last night, I was able to spend several hours on it and it kept me entertained.


      Instead of having to switch back and forth between reading and watching something, I now have a significant portion of my entertainment in one place.

      The app is also user-friendly, with a solid interface.

      Do any of you have something similar? By this I mean do you use any kind of inclusive app that serves multiple purposes?

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