• deann-r

    January 6, 2021 at 10:54 am

    Thanks for reaching out! Since I have type 2 I can’t attest to progression with your type, but neck weakness is quite common with SMA in general. I know we have other members with type 3 & 4 who can hopefully chime in with their experiences. Currently I can still support my head, but do have a headrest on my chair because there’s a point where if my head goes back too far I can’t get it back up myself. If you’re still ambulatory maybe taking frequent breaks in a chair with a headrest just to give those muscles a rest might be helpful. A heated neck wrap might be soothing too especially if you’re experiencing pain. Love mine. It might be something worth talking to your doctor about too if it’s really bothersome.

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