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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 0 replies, has 1 voice, and was last updated by  Kevin Schaefer 10 months, 3 weeks ago.

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       Kevin Schaefer 
      Keymaster

      This columnist from Lupus News Today, which is another of the many sites owned by BioNews Services, is writing a series about dealing with fatigue: https://lupusnewstoday.com/2018/10/26/lupus-fatigue-3-things-that-changed-my-life-part-1/.

      Granted, going to the gym isn’t exactly practical for most of us with SMA. However, I know from experience that doing physical therapy regularly has helped tremendously with my fatigue and stress levels. Even if you can’t get to PT regularly, just having your caregivers help you exercise in your wheelchair is something I’d highly recommend.

      Do you have any tips of your own?

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