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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.


This topic has 0 replies, 1 voice, and was last updated 1 year, 7 months ago by Kevin Schaefer.

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      Kevin Schaefer
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      This columnist from Lupus News Today, which is another of the many sites owned by BioNews Services, is writing a series about dealing with fatigue: https://lupusnewstoday.com/2018/10/26/lupus-fatigue-3-things-that-changed-my-life-part-1/.

      Granted, going to the gym isn’t exactly practical for most of us with SMA. However, I know from experience that doing physical therapy regularly has helped tremendously with my fatigue and stress levels. Even if you can’t get to PT regularly, just having your caregivers help you exercise in your wheelchair is something I’d highly recommend.

      Do you have any tips of your own?

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