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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.


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        Kevin Schaefer
        Keymaster

        This columnist from Lupus News Today, which is another of the many sites owned by BioNews Services, is writing a series about dealing with fatigue: https://lupusnewstoday.com/2018/10/26/lupus-fatigue-3-things-that-changed-my-life-part-1/.

        Granted, going to the gym isn’t exactly practical for most of us with SMA. However, I know from experience that doing physical therapy regularly has helped tremendously with my fatigue and stress levels. Even if you can’t get to PT regularly, just having your caregivers help you exercise in your wheelchair is something I’d highly recommend.

        Do you have any tips of your own?

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