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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 2 voices, and was last updated 1 year, 1 month ago by Halsey Blocher.

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    • #19358
      Kevin Schaefer
      Keymaster

      Hey everyone, check out Michael Casten’s latest column here.

      As always, Michael provides some great words of encouragement for parents and caregivers out there. Despite the doom and gloom message surrounding Ella’s diagnosis, she’s now thriving.

      Do you have any takeaways from this column? Hope everyone here is having a great week.

    • #19376
      Halsey Blocher
      Participant

      I love how Michael was able to take the initial advice they received and turn it into such an awesome positive!

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