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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

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      • #19228
        Kevin Schaefer

        Hey everyone, hope you’re all having a great week!

        Check out Michael’s latest column here: https://smanewstoday.com/2019/06/05/school-classroom-aide-4th-grade-iep/. I’ve written about the subject of school aides as well, and I was fortunate to have several great ones when I was growing up.

        Like Michael writes about here, I think it does help to have the same aide for as long as possible. Especially at Ella’s age, that kind of consistency and bonding is really important. I’m glad she was able to keep the same aide for the next school year.

        Parents, do your kids have aides at school? Have they been able to have the same one for a while?

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