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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 1 reply, has 2 voices, and was last updated by  Ryan Berhar 3 months, 1 week ago.

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      Posts
    • #18765
       Kevin Schaefer 
      Keymaster

      Hey everyone, here’s Michael’s latest column: https://smanewstoday.com/2019/05/08/spinraza-injection-treatment-anxiety-mom-surgery/.

      Per his last column, -in which he wrote about his wife’s medical ailments- he followed up on it this week by writing about the connection that’s grown between Ella and her mother. It’s a cool comparison, and I like how sometimes medical scenarios can bring people together.

      As with all of Michael’s posts, hopefully parents and caregivers can find some encouragement from this one.

    • #18785
       Ryan Berhar 
      Keymaster

      Certainly a lot for a young child to bear. Hopefully they can all grow stronger through this.

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