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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 1 reply, 2 voices, and was last updated 7 months ago by Ryan Berhar.

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      • #18765
        Kevin Schaefer
        Keymaster

        Hey everyone, here’s Michael’s latest column: https://smanewstoday.com/2019/05/08/spinraza-injection-treatment-anxiety-mom-surgery/.

        Per his last column, -in which he wrote about his wife’s medical ailments- he followed up on it this week by writing about the connection that’s grown between Ella and her mother. It’s a cool comparison, and I like how sometimes medical scenarios can bring people together.

        As with all of Michael’s posts, hopefully parents and caregivers can find some encouragement from this one.

      • #18785
        Ryan Berhar
        Participant

        Certainly a lot for a young child to bear. Hopefully they can all grow stronger through this.

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