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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 2 replies, 3 voices, and was last updated 5 months ago by Krystal.

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      • #19467
        Kevin Schaefer
        Keymaster

        Happy Thursday everyone!

        Check out Michael Casten’s latest column here. Michael writes about remodeling a bathroom for his daughter Ella, in order to make it more accessible. This is something my family did for me as well, when I was younger. We added on a bathroom to our house years ago, and it was one of the best things we ever invested in.

        Have you made any bathroom accommodations for your child? Do you have any questions about how to do this?

      • #19488
        Ryan Berhar
        Participant

        For me, especially as I’ve gotten older, a roll in shower is the answer. It has made things much easier. This is really the only accommodation my bathrooms have.

      • #19754
        Krystal
        Participant

        I definitely have questions about this. My husband and I plan to move to a bigger home in the near future, and will probably have questions about how to remodel the bathroom. I think ideas I’ve seen from other families that have been helpful are floating sinks and a roll-in shower. I’m assuming having a bath chair or some kind of seating area in the shower would be best? My daughter sits unassisted but will need securement around her waist/chest because she tends to fall over after some time. I don’t think a bath tub is necessary at all, is that right? And I also think due having arm support surrounding the toilet will help my daughter. Any other thoughts? Is a floating toilet beneficial? What can be placed in the bathrooms to act as storage units that can be easily accessed?

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