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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


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    • #23576
      Kevin Schaefer
      Keymaster

      Hey everyone! Hope you all are having a great week so far. Check out the latest podcast here.

      In episode 58, the SMA News Today team talks about how the COVID-19 pandemic is impacting our Spinraza appointments and other medical procedures. Me, Michael, DeAnn, and Alyssa each share our personal experiences regarding this subject. We also discuss how telemedicine could potentially become the new normal for rare disease patients. Hope you all enjoy this one!

       

      Do you have any takeaways from this conversation? Have you had a Spinraza injection recently?

       

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