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SMA Patients of Color?
Started by:
in: Raising Awareness of SMA
- 6
- 7
- 13 hours, 26 minutes ago
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Torn Between Spinraza and Risdiplam
Started by:
in: Roche and Genentech-risdiplam
- 6
- 8
- 20 hours, 25 minutes ago
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Podcast 59: A Conversation with Brianna Albers
Started by:
in: Flash Briefings and Podcasts
- 0
- 1
- 1 day, 14 hours ago
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Problems Breathing With a Face Mask
Started by:
in: Coronavirus (COVID-19) and SMA
- 7
- 11
- 1 week, 2 days ago
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Interview with Jennifer Perkins, a Mother Living with SMA
Started by:
in: The SMA News Today YouTube Channel
- 0
- 1
- 1 week, 3 days ago
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Old Hobbies Becoming a Saving Grace
Started by:
in: Coronavirus (COVID-19) and SMA
- 1
- 2
- 2 weeks, 1 day ago
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Podcast #58: How COVID-19 Affects Spinraza Appointments and Other Medical Procedures
Started by:
- 0
- 1
- 2 weeks, 3 days ago
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Columnist Writes About Experiencing An Unpleasant Side Effect
Started by:
in: Adults With SMA
- 0
- 1
- 2 weeks, 4 days ago
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The SMA News Today Podcast Episode 57: Heather Kerstetter
Started by:
- 1
- 2
- 1 month ago
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More Fun & Games in Quarantine
Started by:
in: Coronavirus (COVID-19) and SMA
- 1
- 2
- 1 month ago
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Columnist Writes About Finding Solace in a Pandemic
Started by:
in: Coronavirus (COVID-19) and SMA
- 0
- 1
- 1 month, 1 week ago
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Experiencing ANS Storms
Started by:
in: Adults With SMA
- 0
- 1
- 1 month, 1 week ago
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Intestinal Spasms
Started by:
in: Adults With SMA
- 2
- 3
- 1 month, 2 weeks ago
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SMA Patients of Color?
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A father’s perspective: Our journey to finding a treatment
When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.
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