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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.


This topic has 2 replies, 2 voices, and was last updated 2 months, 1 week ago by Alyssa Silva.

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    • #22861
      DeAnn R
      Keymaster

      While hibernation isn’t new to me, it is for my family. In fact I think this is the longest my nieces have been out of school. Exception being summer vacation. Since I’m avoiding contact with them I’m still trying to help entertain them somehow and stay connected. Yesterday I started a text game where I texted an animal. Then the next person had to come up with an animal that started with the last letter of the previous animal. We’ve played this in the car before. It actually worked out fairly well despite my phone issues. We may have had a little cheating going on. Have you ever heard of a Nilgai? Apparently it’s an Asian antelope. Maybe we’ll do rock, paper, scissors or something next. Today I’m mailing them a silly postcard with pizza riddles on it. They’ll have to text me for the answers. Their favorite sports team posted printables too, so I’ll be mailing those to them in the coming days. Included are a word search, object find and coloring page.

      Our town is also doing a “We’re Going on a Bear Hunt” initiative to keep families occupied. Remember that song? Folks are putting teddy bears in their windows so families can go for a drive and scope out the bears. A great way for families to get out and take advantage of the low gas prices without gathering in large crowds. Skype and Facetime are great ways to stay connected as well.

      Looking for more ideas! What fun things have you come up with?

    • #22885
      Halsey Blocher
      Participant

      DeAnn, these are awesome ideas! Might have to steal some of these! We’ve been FaceTiming my grandma. We decided that we can play board games this way and played Life last night.

    • #22894
      Alyssa Silva
      Keymaster

      Love these ideas DeAnn. I guess I haven’t really played many games in this quarantine because I don’t have any ideas for you haha. Although…

      Not really a game, but my best friend and I have been FaceTiming and watching the same show on Netflix so we can talk about it while simultaneously watching it. I know there’s Netflix party but you can’t video chat, just text chat. So we figured FaceTiming works better for us. Might be something fun to do with friends and family!

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