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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.


This topic has 3 replies, 4 voices, and was last updated 2 months, 3 weeks ago by Patrick Lenihan.

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    • #22303
      Kevin Schaefer
      Keymaster

      Hey everyone, hope you’re all having a great week!

      Check out my latest column here. When I was in college, I was active at my university’s student newspaper. It was a great outlet for me, and it ultimately paved the way for my career now. About a week and a half ago, I attended the paper’s 100th anniversary celebration. This is one of my more sentimental columns, but I hope you all can take something from it.

      For those of you who are in college or have been, do/did you participate in any extracurriculars? Even if you’re not in college, do you have any creative outlets?

    • #22328
      Alyssa Silva
      Keymaster

      I’ve been out of college for 7 years, and I’m still kicking myself for not joining my school’s newspaper. My literary professor was the director of it and begged me to join because she loved my writing style. (She’s the reason I write today. I always thought I was terrible at it, but her words lingered in the back of my mind.) Anyway, I thought she was just being nice to the only student on campus in a wheelchair and felt bad I wasn’t more involved. Yeah… 😳

      My final year, a friend of mine started an organization called Her Campus, an online magazine for college women. HC is a national org where colleges could start their own chapters. Trying to be a good friend, I offered to help out and write articles even though I HATED to write. But it was there I discovered I was VERY wrong haha. Maybe my literary professor saw something in me that I couldn’t. And as you said in your column… the rest was history.

      That year, our campus chapter became one of the top chapters in the country, and it was so cool to be a part of that accomplishment.

    • #22369
      natasha
      Participant
    • #22552
      Patrick Lenihan
      Participant

      I was a DJ at my University’s radio station. I wrote and performed stand up comedy for 20 years. I still write material but I haven’t performed in many years. I used to shoot black and white photos and later hand color the black and white prints. Over the last ten years my primary creative outlet has been playing harmonica.

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