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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 1 voice, and was last updated 4 months ago by Halsey Blocher.

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    • #23045
      Brianna Albers
      Keymaster

      Hey all! I’m sure you’ve seen the news about the conference. It’s a bummer, to be sure, but I have no doubt it was the right decision. We’ll see one another again eventually!

      I wanted to encourage y’all to check out some of the columns published by other BioNews sites. I worked as a columns copy editor for a while and greatly benefited from the wisdom of individuals with other chronic diseases. I think it would be a good way to facilitate community during this difficult time and hopefully even learn from one another!

      My challenge to you is to explore our sister sites and post a column that speaks to you. Here’s my contribution!

    • #23065
      Halsey Blocher
      Participant

      We definitely have some amazing writers on all of our sites! It’s always fun to read the stories and experiences that everyone shares!

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