Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”
Hey all! I’m sure you’ve seen the news about the conference. It’s a bummer, to be sure, but I have no doubt it was the right decision. We’ll see one another again eventually!
I wanted to encourage y’all to check out some of the columns published by other BioNews sites. I worked as a columns copy editor for a while and greatly benefited from the wisdom of individuals with other chronic diseases. I think it would be a good way to facilitate community during this difficult time and hopefully even learn from one another!
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.