SMA Patient Groups Outraged About Spinraza Decision - Spinraza (nusinersen) - SMA News Today Forums

Spinraza (nusinersen)

SMA Patient Groups Outraged About Spinraza Decision

Posted by sma-news-today-moderator on August 20, 2018 at 1:59 pm

Click here to read the reasons why patient groups across the U.K. are furious with NICE’s initial rejection of Spinraza to treat SMA because it’s too expensive.

What are your thoughts on this news? Do you agree or disagree with NICE’s decision?

kelly-miller replied 5 years, 8 months ago 2 Members · 1 Reply
1 Reply

kelly-miller

Member
August 22, 2018 at 7:23 pm

What the heck (because I’m trying to be nice) is a “Quality Adjusted Life Year”? Can you really put a price on that? This decision is ridiculous and basically says that certain people in the UK population are not worth helping!

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