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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.

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    • #22769
      Alyssa Silva

      While social distancing and quarantines are the main topics on everyone’s minds as of late, many aren’t taking this global pandemic seriously— and, ultimately, putting those with underlying conditions at risk.

      Yesterday, insider.com shared an article about the disabled community banding together on social media and sharing how COVID-19 could have a serious impact on their lives.

      In it was the SMA community’s very own Shane Burcaw of Squirmy and Grubs explaining how the disease could easily kill him. The article shared his Instagram posts here and here.

      What are your thoughts on social distancing? Is enough being done to nip the spread of Coronavirus in the bud?

      You can read the full Insider article here.

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