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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


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    • #21558
      Michael Morale
      Keymaster

      Hey everyone! Hope you all are doing well. For those of you in the U.S., hope you all had a great Thanksgiving.

      In this episode of the Morale Monologue, I discuss how my Spinraza injections are becoming another part of my routine. For those of us who are on this treatment, many of us had reservations and questions when we started. However, I think we’ve become quite accustomed to this process. 

      I also discuss the future of potential treatments for SMA. Hope you all enjoy this video, and let me know your thoughts in the comments.

      If you are on Spinraza, do you feel that it’s becoming routine for you as well? Do you have any questions about this treatment?

       

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