This topic has 4 replies, 3 voices, and was last updated 11 months, 1 week ago by 
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Since the FDA approval of Zolgensma anticipation is high to see if families can access it. Here is a fascinating article chronicling a families success story. I hope stories like this become the norm.
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Here’s part 2 of this story. Maybe more stories like this will prompt infant screening.
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My daughter dosed with commercial Zolgensma earlier this week. The process was simple for us, but I think it was due to the road that was paved from other families that fought hard for coverage.
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