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Success Story Accessing Zolgensma
Since the FDA approval of Zolgensma anticipation is high to see if families can access it. Here is a fascinating article chronicling a families success story. I hope stories like this become the norm.
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4 Replies
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Here’s part 2 of this story. Maybe more stories like this will prompt infant screening.
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My daughter dosed with commercial Zolgensma earlier this week. The process was simple for us, but I think it was due to the road that was paved from other families that fought hard for coverage.
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Congratulations Krystal! I’m so glad to hear the process went smoothly. It’s so exciting knowing families are able to access this revolutionary treatment. Please keep us posted on her progress. Hugs!
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Very happy for you, too, Krystal. Hope all goes well for your daughter!