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This topic has 4 replies, 3 voices, and was last updated 11 months, 1 week ago by Grace Frank.

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    Posts
    • #19866
      DeAnn R
      Keymaster

      Since the FDA approval of Zolgensma anticipation is high to see if families can access it. Here is a fascinating article chronicling a families success story. I hope stories like this become the norm.

    • #19886
      DeAnn R
      Keymaster

      Here’s part 2 of this story. Maybe more stories like this will prompt infant screening.

    • #19968
      Krystal
      Participant

      My daughter dosed with commercial Zolgensma earlier this week. The process was simple for us, but I think it was due to the road that was paved from other families that fought hard for coverage.

      • #19978
        DeAnn R
        Keymaster

        Congratulations Krystal! I’m so glad to hear the process went smoothly. It’s so exciting knowing families are able to access this revolutionary treatment. Please keep us posted on her progress. Hugs!

    • #20119
      Grace Frank
      Participant

      Very happy for you, too, Krystal. Hope all goes well for your daughter!

       

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