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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.


  • This topic has 1 reply, 1 voice, and was last updated 1 day, 9 hours ago by Halsey Blocher.

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      • #21952
        Alyssa Silva
        Keymaster

        Anyone ever do a digital detox— of any kind— before?

        I just recently took a ten-day hiatus from Instagram for personal reasons. I simply just needed one less distraction to refocus and re-center, and I loved it!

        I find that when I’m fatigued, I resort to scrolling on social media. It requires very little physical exertion and brainpower— the two factors my fatigue robs me of.

        But then scrolling sends my thoughts on a spiral when I see everything everyone else is doing. Meanwhile, I’m stuck on my couch because my disability had other plans for me.

        Giving up Instagram gave me no other choice than to read more and… okay… binge-watch You on Netflix. But it also freed up my time to get more work done! By not feeling the pressures to post on Instagram, I had time to focus on other matters.

        What are your thoughts on digital detoxes? I sometimes wish I could detox from my phone altogether, but unfortunately, my life depends on it. So, instead, I set boundaries.

      • #22011
        Halsey Blocher
        Participant

        I’ve never done a full on detox, but definitely think boundaries are important! I always no when I’m spending too much time with my technology. It makes me feel tired, distracted, and just less cheerful. Stepping back and doing some other things for a while makes me feel more focused, more relaxed, more positive, and happier. I love books so that usually my go-to escape from technology. I also enjoy coloring.

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