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  • The Morale Monologue #19 – Newborn Screening At The State Level WE NEED YOUR HELP

    Posted by michael-morale on March 6, 2019 at 5:37 am

    https://youtu.be/iNcUWWJyYbc

    In this episode of the Morale Monologue, I’m going to discuss newborn screening for spinal muscular atrophy at the state level. SMA was recently added to the national registry of diseases screened for in newborns within the United States. Even though this is on the national registry in the United States, each state needs to adopt this testing at the state level. My video not only discusses this in great detail, I also give the viewers advice on what to do to help ensure that this test is being done in their state. We are so close to eradicating SMA in newborns, but there’s still a lot of work that needs to be done. Newborn screening gives these infants a much brighter future, and if we make our voices heard, these infants will never have to go through the devastating effects that we, as adults have had to deal with.

    Be sure to subscribe to the SMA News Today YouTube channel so that you don’t miss an episode of this vlog, and you can also connect with me right here on the forums page.

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    Newborn Screening Website: https://www.babysfirsttest.org/

     

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    michael-morale replied 5 years, 3 months ago 1 Member · 0 Replies
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