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This topic has 1 reply, 2 voices, and was last updated 2 years, 1 month ago by Ryan Berhar.

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    • #17889
      Michael Morale
      Keymaster

      In this episode of the Morale Monologue, I discuss my last Spinraza injection, that occurred on Monday, March 11, 2019. Overall, this was my 8th dosing of Spinraza, and I talk about the doctor’s decision not to withdraw any cerebral spinal fluid, (CFS).

      This was new to me, because up until now, every doctor withdrew 5 mL of cerebral spinal fluid before injecting 5 mL of Spinraza in my central nervous system. I go over the reasons why doctors made this decision and the benefits that could come from this decision.

      Be sure to subscribe to the SMA News Today YouTube channel so that you don’t miss an episode of this vlog, and you can also connect with me right here on the forums page.

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      Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit http://www.exploregenetherapy.com

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    • #17933
      Ryan Berhar
      Member

      Interesting. Good to know.

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