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The Morale Monologue #20 – No Cerebral Spinal Fluid
In this episode of the Morale Monologue, I discuss my last Spinraza injection, that occurred on Monday, March 11, 2019. Overall, this was my 8th dosing of Spinraza, and I talk about the doctor’s decision not to withdraw any cerebral spinal fluid, (CFS).
This was new to me, because up until now, every doctor withdrew 5 mL of cerebral spinal fluid before injecting 5 mL of Spinraza in my central nervous system. I go over the reasons why doctors made this decision and the benefits that could come from this decision.
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1 Reply
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Interesting. Good to know.
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