In this episode of the Morale Monologue, I discuss my last Spinraza injection, that occurred on Monday, March 11, 2019. Overall, this was my 8th dosing of Spinraza, and I talk about the doctor’s decision not to withdraw any cerebral spinal fluid, (CFS).
This was new to me, because up until now, every doctor withdrew 5 mL of cerebral spinal fluid before injecting 5 mL of Spinraza in my central nervous system. I go over the reasons why doctors made this decision and the benefits that could come from this decision.
Be sure to subscribe to the SMA News Today YouTube channel so that you don’t miss an episode of this vlog, and you can also connect with me right here on the forums page.
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.