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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 0 replies, 1 voice, and was last updated 2 months, 3 weeks ago by Kevin Schaefer.

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      • #21196
        Kevin Schaefer

        Hey everyone! Hope November is off to a good start for you all.

        I’m proud to present the latest episode of the SMA News Today Podcast right here. This is a heavy conversation, as I talk with my friends Jim and Becky Berry, who lost their eldest son Carson last year. Carson was a friend of mine, and we talk pretty extensively about his life and passing in this episode. You can also read this Q&A I did with Carson in 2018.

        This may be a tough episode for some listeners, but I think it’s an important one. As a friend of Carson, it was cathartic for me to have this conversation. We also talk about Jim and Becky’s backgrounds, and their younger son Cooper, who has SMA Type 3.

        I hope you all can take something away from this episode. Please let me know your thoughts, and subscribe to the podcast if you haven’t already. Thanks!

        Do you have any takeaways from Jim and Becky’s story?

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