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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


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    • #21554
      Kevin Schaefer
      Keymaster

      Hey everyone! Hope you’re all having a great week so far.

      Check out the latest episode of the SMA News Today podcast here. I interviewed James Ian, a musician and actor who has SMA Type 3. He currently lives and works in Los Angeles, California.

      We met at this year’s Cure SMA conference, and I thoroughly enjoyed talking with him about his story and career. You can find James on Spotify and Instagram.

      Hope you all enjoy this episode! Let me know if you have any thoughts or questions, and go check out James’ work. Thanks everyone.

      Photo cred: Travis Tanner Photography 

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