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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 0 replies, has 1 voice, and was last updated by  Kevin Schaefer 1 month, 2 weeks ago.

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    • #19641
       Kevin Schaefer 

      Hey everyone! Happy 4th of July to those in the U.S.! I’m glad to be back here.

      I wanted to do a recap of my experiences at this year’s Cure SMA conference. In this video, I talk about some of the highlights, and share some pics with you all.

      Though the flights there and back were less than stellar (more on that in my next column), the conference itself was a blast. I even got to meet a few celebrities in the SMA community.

      Hope you all enjoy this video! Let me know your thoughts in the comments.



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