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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

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        Kevin Schaefer
        Keymaster

        Hey everyone! Happy 4th of July to those in the U.S.! I’m glad to be back here.

        I wanted to do a recap of my experiences at this year’s Cure SMA conference. In this video, I talk about some of the highlights, and share some pics with you all.

        Though the flights there and back were less than stellar (more on that in my next column), the conference itself was a blast. I even got to meet a few celebrities in the SMA community.

        Hope you all enjoy this video! Let me know your thoughts in the comments.

         

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