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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

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    • #23154
      Kevin Schaefer

      Hey everyone! Hope you’re all staying safe and healthy out there.

      Check out the latest podcast episode here. In episode 56, Michael Morale provides an overview of the different SMA treatments. He also discusses recent news about the experimental therapy risdiplam.

      Then in part two, special guest Ralph Yaniz joins Michael and I to discuss the new Netflix documentary “Crip Camp.” Ralph is a columnist for Muscular Dystrophy News Today, and a disability rights activist. Check out his column here. Listen to our thoughts on this film, which explores the early days of the disability rights movement.

      Hope you all enjoy! Let us know your thoughts in the comments.

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