Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”
Hey everyone! Hope you’re all staying safe and healthy out there.
Check out the latest podcast episode here. In episode 56, Michael Morale provides an overview of the different SMA treatments. He also discusses recent news about the experimental therapy risdiplam.
Then in part two, special guest Ralph Yaniz joins Michael and I to discuss the new Netflix documentary “Crip Camp.” Ralph is a columnist for Muscular Dystrophy News Today, and a disability rights activist. Check out his column here. Listen to our thoughts on this film, which explores the early days of the disability rights movement.
Hope you all enjoy! Let us know your thoughts in the comments.
Viewing 0 reply threads
You must be logged in to reply to this topic.
FDA Approves ZOLGENSMA for SMA! Talk about it now — click below:
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.