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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 4 replies, 3 voices, and was last updated 1 year, 3 months ago by Kevin Schaefer.

    • Author
      • #13849
        Kevin Schaefer

        For those of you who go to a school that’s either out-of-state or significantly far from where you live, I’m curious how you manage going home for long weekends and holidays. I commuted from home throughout my time as a student, so it wasn’t an issue.

        For those of you who do this though, how often do you go home? What tips do you have for traveling home? How do you coordinate with your caregivers?

      • #13954

        My son has the same week plan Kevin ! My family lives in London & my son getting education in Cardiff high school and on every weekend he come home to live with us for that he leaves his school in the afternoon & comes to home in the evening & again leaves home in the sunday evening to attend his classes this is what he follows as his class often close early on Fridays. He usually uses booking com discount code for his travelling purposes.



        • #13955
          Kevin Schaefer

          That’s great! Thanks for the tip about booking.com too.

      • #13956
        DeAnn R

        My college was a little over 2 hours away.  On long weekends and holidays my parents would usually make the trek to pick me up.  At the time I was going through an agency so they didn’t mind not having to staff a weekend.  It’s tough when you see others able to hitch a ride with friends, but we worked it out.

        • #13961
          Kevin Schaefer

          Yeah I imagine there are definitely pros and cons to living away from home. I had been set on NC State since high school, but ECU was my backup. It’s about an hour and a half from where I live, and my Mom and I would’ve stayed near campus during the week and gone home on the weekends if I had done that. Fortunately I got into State, so it all worked out.

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