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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

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    • #22576
      Michael Morale

      In this episode of the Morale Monologue, I’m discussing two important questions regarding risdiplam. Those of us that are receiving our Spinraza maintenance doses get these injections every four months. Quite a few people have said that they experience a lethargic feeling as they get closer to their next injection. Here, I give you my opinions as to why I think risdiplam will be different.

      The other question that I address is that some people who wanted to begin their Spinraza treatments were unable to do so, due to medical complications. Due to their spinal fusions, doctors were unable to find an opening to inject the Spinraza treatment.

      I discuss how risdiplam will benefit these individuals, along with everyone else who wants to take it, once it’s approved by the FDA.

      Did you enjoy this video? Do you have any other questions about risdiplam you would like to see answered?

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