They just released studies showing the expected results from Evrysdi aren’t going to come for 1-2 yrs. I didn’t take Spinraza, but I’ve been on Evrysdi for4 months now. My husband thinks my breathing has gotten better, stronger, and we’ll find out Thursday when I go for a pulmonary function test. I feel stronger in one of my feet and my trunk area, but that could be wishful thinking. I haven’t had any symptoms since about the 3rd week. That was stomach upset that ginger took care of.
Good luck with your decision! I don’t think anyone else’s experience with either medication is applicable to you. We all have different bodies even tho we all have SMA. Our reactions are going to be different too. All you can do is get the info, which you are, and do what is best for you according to all the factors.