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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


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    • #21918
      Brianna Albers
      Keymaster

      Hi, all! I thought I’d share this with y’all, in case any of you are able to take advantage of it. I’ve been looking to hire drivers — PCAs whose only responsibility is to drive me to a place and drop me off. I poked around Facebook and got some interest, but I had a ton of interested parties on the app Nextdoor, which connects you to other people in your neighborhood. It’s free and super easy to sign up for. Might be worth checking out if you’re looking for caregivers?

      What’s the most unique way that you’ve found caregivers?

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