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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 2 replies, 2 voices, and was last updated 5 months, 3 weeks ago by Kevin Schaefer.

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      • #19392
        Kevin Schaefer
        Keymaster

        Hey everyone! Hope you all had a great weekend.

        I just wanted to share this with you all. For those of you know, Kevan Chandler is a world-traveler, author, and nonprofit founder who has SMA. In 2017, I had the opportunity to meet him, and I interviewed him for our main website.

        Yesterday, I came across his book “We Carry Kevan” at Barnes & Noble, which I thought was really cool. I read an earlier draft of this book before it was widely published, and I highly recommend it. It’s just exciting to see the work of writers and artists with SMA in the mainstream market. You can find out more about this book here.

        Is anyone here familiar with Chandler’s work? Have you read his book?

      • #19425
        Halsey Blocher
        Participant

        Kevan is a friend of mine. We live in the same city. We were actually supposed to meet for coffee today, but plans changed. He’s a really cool guy!

        • #19428
          Kevin Schaefer
          Keymaster

          That’s awesome! Yeah, he’s a great guy. I went to a speaking engagement he did in 2017 in Wilmington.

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