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When to get a full-time PCA
Hi everyone, my name is Chris and I have SMA type three I am 38 this year. I’ve been having some problems with my right side for the past year and has also been getting hard to try to feed myself. I am moving back to Virginia to be closer to family and my support system. I was wondering when is it a good idea to get a full-time PCA to live with me while I am still living in Maryland, I have visiting angels coming in three days a week and my old helper come twice a week. The other thing I communicated with my neurologist And it looks like they are starting to do research into how to repair the damage caused by SMA, hopefully in the next five years with crisper, we can have somewhat of a full cure. Let me know what you think.
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1 Reply
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Hey Chris. If you feel as though you need full-time caregivers, I would get that process started right away. I’m not sure what that process is like, as it varies state by state. However, I do know that these types of things can take a while to be implemented. When are you moving to Virginia? Would it make more sense to start getting the ball rolling there?
As far as CRISPR goes, I’ve been following it for a while but haven’t seen any recent literature on it specifically for SMA. Looks promising, though!
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