What an SMA Patient Really Needs

In this Muscular Dystrophy UK video, Dr. Ros Quinlivan from the Queen’s Square Centre for Neuromuscular Diseases in England explains the different types of spinal muscular atrophy (SMA) and the special needs that those with the disease will require throughout life.

Read how a British charity is helping children with disabilities such as SMA become gamers.

In addition, Marion Main, a senior physiotherapist from London’s Great Ormond Street, discusses how important physiotherapy is for children who have SMA. James Lee, a 28-year-old Londoner who has type 3 SMA, shares how his daily life is affected by the condition and more about the ‘alert card’ that he carries with him to explain his condition to medical professionals in an emergency.

Read five frequently asked questions about spinal muscular atrophy here.

IBD News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Leave a Comment

Your email address will not be published. Required fields are marked *