This MediaStorm documentary is all about Philly Mayer. Philly is a bright and happy nine-year-old boy who was diagnosed with spinal muscular atrophy (SMA) as a toddler.
The Mayers realized something was wrong when Philly suddenly stopped walking in his baby walker just before his first birthday. A few weeks later, he refused to stand. After many tests, the devastating news came that he had SMA, The Mayers were told Philly would only live until he was seven, but he is still going strong two years later.
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.