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Living With a Degenerative Muscular Condition


This video from Muscular Dystrophy Queensland follows several patients who have different forms of degenerative muscular conditions.

Watch a touching documentary about 11-year-old SMA patient, Philly.

Eight-year-old Jack has type II spinal muscular atrophy (SMA), and 49-year-old Tracy has facioscapulohumeral muscular dystrophy (FHSD MD). The two talk about the difficulties they face and their fears for the future if they don’t have the equipment they need as their diseases progress.

Find out more about a charity which helps children with severe disabilities play video games.


SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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